Someone who inspires.
I'll talk about Josiah.
At an early age, Josiah Viera was diagnosed with Hutchinson–Gilford progeria syndrome or "progeria"--a rare genetic disease that causes accelerated aging in children.
There is no known cure.
In 2005, doctors thought the 16-month-old had only hours to live, and while hospitalized, his family agreed to have his ventilator disconnected so that he could die peacefully.
But something unusual happened that night after the machines were turned off.
Josiah began improving.
Getting stronger each day.
He faced numerous challenges, but continued to impress everyone.
Medical science had no explanation, and by age seven, the 27 inch tall and 16 lbs. boy (yes, 15.5 lbs. to be precise) was pursuing his dream to play little league baseball.
In 2010, ESPN reporter Tom Rinaldi did an excellent story on Josiah.
You meet his mom.
And his sister.
And you get to hear from Josiah.
And see determination and joy epitomized.
If you have a few minutes, Josiah's story is worth seeing.
Or, you can read about him by going to PennLive's news site.
The life expectancy for children with progeria is typically between 8 and 13 years.
The last media story on young Josiah was when he attended the State College Spikes minor league baseball game (St. Louis Cardinals affiliate) in August of last year.
Here is a photo:
Whenever I feel that life is treating me unfairly.
When I lack motivation.
I need to remember the strength of Josiah Viera.
A child who lives as I should: with grace.
Recognizing that each moment is a gift.
My prayers are that Josiah gets to attend some baseball games this spring and summer as well.
Have a good weekend everyone.